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Document Description
TitlePatients' perceptions of their experiences with end-stage renal disease (ESRD) and hemodialysis treatment
AuthorGregory, Deborah M., 1958-
DescriptionThesis (M.Sc.)--Memorial University of Newfoundland, 1998. Medicine
Paginationxiii, 153 leaves
SubjectChronic renal failure--Psychological aspects; Hemodialysis--Psychological aspects; Hemodialysis--Patients
Subject.MESHKidney Failure, Chronic--psychology; Renal Dialysis--psychology
Degree GrantorMemorial University of Newfoundland. Faculty of Medicine
NotesBibliography: leaves 123-133.
AbstractTo explore patients' perceptions of their experiences with ESRD and hemodialysis treatment, 71 interviews were conducted with 36 adult patients established on dialysis. The sample was equally divided by gender, with 78% over 50 years (M = 57) and most on dialysis for <. 3 years (72%). Using a grounded theory methodology and a constant comparative method of analysis, a theoretical model was developed which suggested that patients' perceptions of their experience revolved around three constructs. These include redefinition of self, quality of supports, and meanings of illness and treatment and are linked by "critical turning points" which facilitate or impede quality outcomes. The emerging theory suggests that a "new sense of self is an emotional/psychological state that fluctuates with the evolving meanings of illness and treatment (acute/chronic illness, treatment effects) and perceived quality of supports (health care providers, family and friends, dialysis peers, dialysis environment). The findings indicate that when confronted with this new way of being-in-the-world, the individual becomes cognizant of an uncertain future, continued dependence on life-sustaining technology and the expertise of health care providers, and the demands upon and sacrifices incurred by significant others. All aspects of patients' experiences with ESRD and hemodialysis treatment must be considered if health care providers are to facilitate positive health outcomes. -- Conclusion: Patients' perceptions of their experiences on hemodialysis revolve around the psychological adjustment to illness chronicity, the quality of supports (particularly in facilitating this adjustment), acceptance of treatment regimes, and the tension between desired and expected, and the actual treatment outcomes. The perceived experience may influence the quality of outcomes. -- Key Words: hemodialysis; grounded theory methodology; quality of outcomes; patients' perceptions.
Resource TypeElectronic thesis or dissertation
FormatImage/jpeg; Application/pdf
SourcePaper copy kept in the Centre for Newfoundland Studies, Memorial University Libraries
Local Identifiera1266728
RightsThe author retains copyright ownership and moral rights in this thesis. Neither the thesis nor substantial extracts from it may be printed or otherwise reproduced without the author's permission.
CollectionElectronic Theses and Dissertations
Scanning StatusCompleted
PDF File(19.55 MB) --
CONTENTdm file name70710.cpd